I was diagnosed a little over two years ago with Epstein Barr virus. Immediately prior and subsquent to this diagnosis, I suffered from ulcers, ongoing headaches, a continued sore throat, congestion, constant fatigue, fainting spells, thyroid fluctuations, heart problems and cellulitis. Having Epstein Barr has completely changed my life and the feelings of frustration and depression can get overwhelming.
Worse yet, I have found little information about this virus either online or through my medical practitioners. Sufferers seems to wind up with ongoing health problems that lead to chronic fatigue syndrome, lymphoma and other ailments. There are no support group, research centers or help centers that I can find and I hope to raise awareness, unite other sufferers and provide updated information about Epstein Barr through this blog.
Please feel free to comment and connect if you have Epstein Barr and any useful information to help other sufferers. Everyday I will post additional information about the virus and updated facts and I welcome your input.
Subscribe to:
Post Comments (Atom)
3 comments:
I also was diagnosed with extremely high titers of reactivated epstein barr about a year ago and it has changed my whole life...I have also been diagnosed with chronic fatigue syndrome based on the fact that I have had epstein barr for over 20 years. It is a miserable disease and for some few people seems to only get worse over time. I occasionally come across some very good articles though and will forward the links to your blog. Best of luck to you and I will hope for your remission.
www.immunesupport.com/library/showarticle.cfm/ID/8631
I just found out yesterday I have the virus. I came across you in search of information. If there is a support group or more info, I would also be keen to find it. Thanks for putting this online. I am grateful I found a human being!
Post a Comment